Well we have passed the 3 yr milestone of our journey. Oct 1st was the day that we ended up at Akron Children’s ER and then to PICU.
Sat, Oct 8th was Brian’s 3 yr diagnosis date. We are humbled by what we have been through and grateful for where we are today. God is Good, All the Time!
We have had another burst of summer weather. 70 + and gorgeous. Yesterday Brian had his bike out riding, and we took a walk. Oh, how I love summertime.
Brian’s favorite pastimes, besides riding bike are: Playing with Legos, playing games on the computer, playing Wii, reading Harry Potter, watching movies, making forts in the woods, building anything. (Give him wood, cardboard, duct tape, nails, wheels, rope…..and he will construct just about anything.) On Friday he built a little go-cart out of a piece of wood, 3 small wheels, an old stadium chair and even had some sort of brakes. He is too funny. He said “It’s a little bumpy going down the driveway.”
We are anticipating another trip to Florida this year yet. Brian still is not supposed to be in the sun much, so we post pone our vacation until the cooler months. I am ready! I need to get away from the norm for a while. I don’t want to say that I have a bad attitude….but I am leaning that direction. I can’t wait to relax! You can pray for us that we can all be on the same page with our decisions and that we can have an enjoyable vacation together as a family.
Well, the morning is getting away from me. Hope you each have a wonderful week.
Jolene