Posted by: updateonbrian | August 1, 2011

Mon. Aug 1st

Wow this summer has just seemed to fly by.  It is sad to think that school starts in less than a month.  Today Brian heads off to camp for a week.  I will pick him up on Sat morn.  It is such a good time for him to get away and to be on his own.  Both kids love to go to camp and it is a privilege that our church provides for them.  Britney went 2 weeks ago and had a blast.  They meet new people and make some good friends.

We enjoyed a nice long weekend camping.  We left Thurs eve and headed to Alum Creek.   We were with 3 other families.  I have thoroughly enjoyed my camper this summer and never realized how much I need the R & R.   It is so nice to get away and relax.  Even though we come home on Sunday and I have LOTS of laundry.   But then again, I would have that anyways, right?

Brian is really doing well this summer.  He did have a slight sunburn about a week ago, and it literally disappeared overnight.  This is a miracle in itself, they had told me that he would be sensitive to the sun for the rest of his life.  For Brian, this ends up to be GVHD (Graph Verses Host Disease)  So, we are again humbled by his recovery and at God’s healing!!!!!!

Please pray for an issue that our family is dealing with right now.  I don’t want to share exactly what it is, but it is again residual side effects from the Hospital stay, the separation from Ed and Brit, being thrown into the face of death, and the post traumatic stress that still shows it’s ugly face.  Please pray that we would be able to have a clear picture, to seek God’s will, and make a positive choice.  (I did not sleep very well last night.  A lot of praying and restless sleep.)

Next week on Thurs, Aug 11th, I take Brian back to Akron Children’s for a Back to School Check-up.  We will get to meet with Dr Patton.  Not sure the reason for this appt, except I am sure they will do blood work.  I would like to try to extend our next appt out until March 2012.  He is doing well, and originally they had said we would go to semi or annual appts after a while.

Thank you for your continued prayers.  We have a praise for Brian’s friend Hannah from ACH.  She is just reaching her 1 yr post transplant.  She has also been a miracle of Christ’s healing.  Another good friend Carol is just about 2 months post transplant.  She is doing well, but has been really weak and doesn’t have much of an appetite.  Please pray for Karrie, a little girl in a neighboring town…she is struggling with Neuroblastoma.  We pray for a miracle….and less pain!

May you each have a wonderful week and enjoy the beautiful warm weather.   (I love the sun!)

Jolene

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Responses

  1. Jolene & Family I’m lifting you all up in the name of the Lord, He is our all. Life can really throw some hard balls. Stay strong in Christ as a Family you will get beyond this huge bump. Keep talking & lay it all on the table of God, hes there & will always be. Wishing I could give you all a BIG HUG!!!! Love ya


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